BRAIN INJURY ALLIANCE -WHO WHAT WHY r they

Brain Injury Alliance -

hosted by Craig Sicilia

Who are they, are they good for survivors, or are they another organization that wants to control them, control the resources and worse try to take the voice of brain injury awary from those living with brain injury.

there website has these bullets attached to it

• We will act with honesty and with transparency
• We will be both trusting and trustworthy
• We will act in the expressed best interests of those we serve
• We will communicate openly and actively seek feedback
• We will encourage diversity of thought, people and ideas

 This is so far from what we have seen in our state its almost ironic. In the last several years we have seen a break up in the professionals that at one time were the only voice for brain injury.  And many still think they are the voice for us.  But the survivor network stands true to its mission, for us by us.  We want to get a fair since of who the alliance is, in my state it was an exit for an organization that was and is out of touch with survivors and focuses on the money stage of our injury marketing and monetizing that stage.  Before these survivors and their families lose everything they once had including themselves.  We have probed in the BIAA though not perfect they appear to be moving in the right direction, I have sent emails out to some of the recent states and their directors and other professionals, as well as survivors from those areas.  By appearance they have less regards for survivors and many states have abandoned their groups all together

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